Category Archives: Awareness

Has your child has been diagnosed with

Posted on by

Has your child has been diagnosed with:

  • autism
  • attention deficit disorder
  • down syndrome
  • cerebral palsy
  • developmental delays
  • dyslexia
  • a vision or hearing impairment
  • a traumatic brain injury
  • a speech impairment
  • mental health concerns
  • or perhaps you don’t have a diagnosis, but you suspect autism, ADHD or some other kind of learning issue exists

The world is not always kind to kids who don’t fit the “typical” mold (or to their families)…..do these sound familiar?

  • neighbours have been avoiding you
  • strangers stare when you and the kids go to the artificial beach
  • your child has been the victim of teasing or bullies at school
  • the teacher says your child isn’t motivated or won’t sit still to do their work
  • your life has becomes a blur of medical appointments, evaluations, and therapy sessions (most of which your medical expense doesn’t have money to pay for) and the strain of too many bills and sheer exhaustion is starting to show on you and on your relationships
  • daycare centers and teachers take one look at your child and say “he just won’t fit in” OR “we don’t teach those kind of students here”, OR “we’re don’t have enough…..(time, staff, resources) to care for your child”.

You are NOT alone –

These are people who understand what you are facing and value both you and your child. At our support group everyone understands that you are the most VITAL element in your child’s success.

Our Support Group can help!

Our Support group is being designed specifically for you — a parent raising a child with special physical, emotional, or educational needs. — a voluntary mother desperately wanting to help parents with special needs. — a self motivated volunteer with experience on Community Based Organisations. — an International NGO(Handicap International) to help us grow. — a young motivated wheelchair user who is experiencing the difficult life in our closed community. We want to be your one-stop destination for practical information, success strategies, and moral support.

Visit our meetings and be a part of this noble cause. Make your presence at our meetings and get involved. Our mission is to connect parents to answers.

Questions? Comments? drop us a note, we’d love to hear from you.

Yasiph

Mob: +960 7776688

Messenger: yaie[at]msn[dot]com

Email: yasiph[at]gmail[dot]com

You could also contact – Ifham:7714944; Nelfa:7792303; Jeroen(HI):7896307; Ahmed(HI):7915321

Update:

Silly of me not to publish anything about our upcoming meeting.. hehe.. sorry :-)
Our next meeting will be held at Henveiru Youth Center(as usual) HI Office on Thursday, 12th June this month. Which will be hosted with the help from Handicap International and Rajje Foundation. The time is 8:30pm for now(not yet confirmed). We are hoping to see Min Yu(Rajje Foundation) do a presentation on getting organised. Perhaps we may also see someone from IGMH Physio dept.

Parent Participation Improving services for the disabled children parts 1 & 2

Posted on by

Parents of children with special needs and young people care passionately about the services they receive. Parents have strong views on the services they get; whether govt. offices are working together and most of all whether the needs of their child are truly being met. All services are now expected to consult with parents and involve them in planning and development. But the concept of ‘parent participation’ means different things to different people. How do we ensure that parent participation is effective and meaningful for parents?

We(Ifham, Nelfa, Jeroen frm Handicap Intl. and I) are trying to form a support group consisting of parents of children with special needs, a young group of children with hearing impairment and a handful of relatives to address these issues and to help and support the many parents and professionals who want to work together to improve services.

Almost everyone reading this post would understand that parent participation is a successful way of providing better services. Evidence shows that parents who are involved in planning and developing services are more contented and empowered parents.

I hope that our meetings will offer an array of practical examples and suggestions to help professionals and parents become effective participators. It also offers an opportunity to welcome and reflect on a changing culture within the public services that now places such importance on the input of service users in our little but wonderful country.

Inviting parents to participate in the planning and delivery of services poses many challenges for govt. officals. Yet it is only through working with us parents that they understand how to deliver the services we need. Parents observe and experience the system at close quarters and this knowledge and expertise is unique.

I believe that good participation leads to empowered parents, empowered children and empowered services. This is undoubtedly a win-win situation for childen with special needs, their families and the professionals who work with them – what more could we want?